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Sunday, 15 April 2012

April 15th

Apologies I have been so poor at updating my blog over the past few months. We so appreciate everyone's concern for us and know what a good mechanism this is to let everyone know, in our own words what is going on. I haven't felt up to keeping this up to date but promise to continue to let you know how we are and what's going on in our lives.

I have published my blogs for the last few months now so that anyone who wants to can read through them and see what has been going on.

Thank you SO much to everyone who cares so much for us and takes the time to read this & for all the support you give us in so many ways.

April 14th

We are just back from Cork and had a lovely time with friends and family. We spent a lot of time with the Lauren, Isabel & Leah and had lots of fun - bike shopping, playgrounds, shopping, playing games, baking etc It was a really lovely time.

We spent Easter with Andrew & Orla in Rosscarbery and had lots of evenings out - thank you to everyone who invited us over for coffees, dinners etc It was so good to see so many people and catch up.

We have a quick turn around as we're away to the sunshine - Gran Canaria tomorrow for a week. I know it sounds like we are always away but wherever we have been over the last few months we have spent a lot of time with other people and haven't spent that much time alone together. We are looking forward to spending time together, enjoying the sunshine, taking stock of things and thinking through what we do next re work, home etc etc

March 30th

We went back to London to see the consultant today and he was generally happy with my progress and tolerance of the chemotherapy. I haven't had any real side effects apart from mild mouth ulsers. The biggest issue is having to get up before 8am to take my tablets and then eat late so I can have them at 8pm as they need to be 12 hours apart! We had a good chat with him and see him again in 4 weeks to see how I'm doing.

We are going to Cork on the ferry tomorrow to spend some time with family and hopefully help look after the girls while they are off school on their Easter break.

March 27th

An amazing thing happened today - I was back in London for my Zometa treatment today. On the way to London, I called the insurance company to see whether they had made a decision regarding covering the genetic testing. I have been chasing them for 3 weeks now and haven't had a response as they have been going back an forth with the consultant.

When I called this morning they amazingly said that they would cover the test. The most amazing thing is that our company is switching health insurance providers on April 1st - only 4 days time! I phoned the gentic consultant's PA immediately and she was just about to call me with the good news but she said it would be very difficult to get an appointment with the consultant. Then I mentioned I was on the way to the hospital and somehow she managed to fit me in straight this afternoon! I had the test this afternoon...after about 5 attempts to get blood from me! and will get the results in 3 weeks.

We were so amazed as it all happened so quickly, especially as the insurance is only valid for 4 more days! It was a real answer to prayer :)